ADAO founder draws from personal loss to fight asbestos disease, raise awareness

“For every life lost to asbestos, a shattered family is left behind.” This is the motto and the message of the Asbestos Disease Awareness Organization (ADAO) co-founder Linda Reinstein. Linda, who now serves as ADAO’s executive director, became an activist on behalf of the victims of asbestos disease in 2003, when her husband Alan was diagnosed with mesothelioma. He passed away in May 2006.

The Asbestos Disease Awareness Organization, which Linda established in 2004 along with co-founder Doug Larkin,  is a non-profit organization dedicated to serving as the voice for all asbestos victims. Its mission includes education, outreach, networking for asbestos victims, and especially working to accomplish a complete ban of asbestos in the United States. ADAO has gotten a U.S. Senate resolution to officially declare April 1 as Asbestos Awareness Day, and hosts an annual Asbestos Awareness Day Conference to increase awareness and help prevent future exposure.

This year, the Acting Surgeon General Steven K. Galson supported National Asbestos Awareness Week, the first week of April, and issued a statement about the deadly health hazard posed by asbestos.

Since co-founding ADAO, Linda has globally united countless individuals and families who have been affected by asbestos related diseases, including mesothelioma and asbestosis. She also has worked to produce awareness materials including a slide show called “Asbestos Kills,” and other educational materials including an internationally distributed online book, “Reflections,” which features articles from renowned global experts.

Last week, the ADAO launched a new resource center page on its web site, and issued a call to action for those of us in the mesothelioma community to push for a complete ban on asbestos in the United States by contacting our Congressional representatives.

There is an easy way to do it – just visit www.banasbestos.us and click on the link that says “Write Your Congressman,” which is on the home page. This will take you to a form you can fill out, and it will automatically send the message to your Congressional delegates. Remember, YOU shoud be THEIR voice on Capitol Hill!

“I need them to feel our pain,” Reinstein said. “Asbestos victims – patients, families, caregivers -  are turning their anger to action, across the nation, working for the difference we can make, together.”

Pictured above, Linda Reinstein with her and Alan’s daughter Emily. The flag is in recognition of Alan’s military service to his country.

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Tags: ADAO, asbestos, Asbestos Awareness Day, Asbestos Awareness Week, Asbestos Disease Awareness Organization, asbestosis, Linda Reinstein, mesothelioma, Steven K. Galson, Surgeon General

This entry was postedon Tuesday, October 20th, 2009 at 2:30 pmand is filed under Events, News, Organizations, People.You can follow any responses to this entry through the RSS 2.0 feed.You can leave a response, or trackback from your own site.

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Facebook spreading mesothelioma awareness

If you are a fan of the social networking site Facebook, I hope that you are linked into the many mesothelioma survivors, supporters, groups and victims that are posting regularly there. If you don’t already have a Facebook page, setting one up is easy. Just go to www.facebook.com and the easy instructions on the home page will walk you through the steps. There are lots of new and improved privacy controls that you can set so that you don’t have to share more information than you want to. The nice thing about Facebook is that you accept and approve “friends” who can see your information.

MyMeso has a Facebook page, and I invite you to join us. You can visit our page here: http://tinyurl.com/ydl5xhd

Our good friend Debbie Brewer in the UK is online on Facebook. Just search for her name and you’ll come to her profile. She recently has started a Facebook fan page for Dr. Thomas Vogl, the groundbreaking researcher who is pioneering chemoembolization as a treatment for mesothelioma. Those familiar with Debbie’s story know that she has had great success with chemoembolization under Dr. Vogl’s care. You can visit his page here:  http://tinyurl.com/yeq5969

There also is a group set up to honor Debbie herself! You can find it by clicking this link: http://tinyurl.com/ychey9g

There is a special event planned for this Friday, Jan. 15, to celebrate Debbie, as well. “Raise a Glass to Debbie” asks everyone to raise a toast in honor of Debbie’s work as an activist for mesothelioma awareness and the fight for a cure. The event will occur between 8 p.m. and 11 p.m. and it doesn’t matter where in the world you are – the UK, the U.S., Australia, or any point on the globe – just join in!

There are so many wonderful support groups on Facebook. Two of these that my regular readers know I talk about a lot are the Asbestos Disease Awareness Organization (ADAO) (find them here: http://tinyurl.com/ybhmn9j) and the Mesothelioma Applied Research Foundation (http://tinyurl.com/ybv2uut).

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Tags: asbestos, Asbestos Disease Awareness Organization, Debbie Brewer, Facebook, mesothelioma, Mesothelioma Applied Research Foundation

This entry was postedon Tuesday, January 12th, 2010 at 1:33 pmand is filed under Organizations.You can follow any responses to this entry through the RSS 2.0 feed.You can leave a response, or trackback from your own site.

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ADAO praises senate for asbestos awareness resolution

This week the Asbestos Disease Awareness Organization (ADAO) praised Senate leaders for a resolution that declares the first week of April 2010 as “National Asbestos Awareness Week.” This is the sixth year in a row that the ADAO has been active in working with Senate leaders to secure a national resolution in recognition of the dangers of asbestos.

The resolution is sponsored by Sen. Max Baucus (D-Mont.). Co-sponsors and key supporters are Sen. Barbara Boxer (D-Calif.), Sen. Richard Durbin (D-Ill.), Sen. Dianne Feinstein (D-Calif.), Sen. Johnny Isakson (R-Ga.), Sen. Patrick Leahy (D-Vt.), Sen. Patty Murray (D-Wash.), Sen. Harry Reid (D-Nev.) and Sen. Jon Tester (D-Mont.).

A news release from the ADAO quotes the organization’s Co-Founder and Executive Director Linda Reinstein as saying, “We are grateful to the U.S. Senate to have the opportunity to help raise the level of public awareness about the prolific dangers of asbestos and further unite doctors, scientists, and public health advocates during National Asbestos Awareness Week for this important effort. During the past six years, ADAO has seen the progress and indeed, this confirms what Americans deserve and want. We know asbestos prevention and education will save lives and dollars.”

The ADAO was founded by asbestos victims and their families in 2004. It seeks to give asbestos victims and concerned citizens a united voice to raise public awareness about the dangers of asbestos exposure. ADAO’s mission includes supporting global advocacy and advancing asbestos awareness, prevention, early detection, treatment, and resources for asbestos-related disease.

Asbestos is a known human carcinogen and exposure can cause asbestos-related diseases, including mesothelioma, lung cancer and asbestosis. According to the ADAO news release, studies estimate that during the next decade 100,000 workers around the world will die of an asbestos-related disease. This equals 30 deaths per day.

The ADAO annually holds a conference in conjunction with National Asbestos Awareness Week. The Sixth Annual International Asbestos Conference is set for April 10, 2010, in Chicago, Ill.

For more information about ADAO or for conference registration, visit ADAO online at www.asbestosdiseaseawareness.org.

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Tags: ADAO, asbestos, Asbestos Disease Awareness Organization, asbestosis, Chicago, Linda Reinstein, lung cancer, mesothelioma, National Asbestos Awareness Week, Sen. Barbara Boxer, Sen. Dianne Feinstein, Sen. Harry Reid, Sen. Johnny Isakson, Sen. Jon Tester, Sen. Max Baucus, Sen. Patrick Leahy, Sen. Patty Murray, Sen. Richard Durbin, Sixth Annual International Asbestos Conference

This entry was postedon Friday, March 5th, 2010 at 10:12 amand is filed under Events, News, Organizations.You can follow any responses to this entry through the RSS 2.0 feed.You can leave a response, or trackback from your own site.

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